Archive for July 28th, 2012


Thursday, I had a severe shooting pain from the top of my head radiating down behind my right eye to my nose and mouth. Horrible tingling and burning sensations have consumed my lips, tongue, nose, and all around my eye. I now have a line on that side of my face under my eye that looks like a scar and the whole side droops. This is more than numbness—there is muscle weakness and I’m having difficulty moving my eye and have problems blinking. There is little feeling in that side of my face but where there is feeling, it is awful. All around my eye there is reddish purple color like I have a black eye—scary.

My oldest daughter–what would I do without my daughters–went with me to see GP Friday. He thinks there might be a nerve issue but has no clue why. The neurosurgeon wondered if there was a brainstem issue but he was only called in to see about the AVM. These symptoms seem to mimic some of the same signs of MS. There is loss of feeling all on that side of my body but it is sporadic. I have been suffering from the face thing since 2008. The other numbness which I thought was because of my AVM has been going on for over 10 years.

I’m still waiting for a referral to a neurologist but there is this insurance hospital hang-up due to a contract dispute. If that doesn’t get worked out then not only is this situation affected but I will have to travel about 150 miles if/when my AVM bleeds. Most likely, it won’t do any good to go if that is the case. At this point, I’m not sure what is worse and don’t know what will happen.

I am sorry that I’m not filled with hope and joy today. I’m trying not to be self-absorbed with prayer and meditation but it is difficult to part with this pain–not that I want to hold on to it 🙂 . May your day be so much better!


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