I have been suffering from an autoimmune issue where I am allergic to myself—really. I have had an awful itchy rash from head to toe since July. It is called chronic urticaria and it takes all of my energy just trying to deal with it. My allergist is a really nice lady. She is confident that I will go into remission soon…lol…even if she has a patient that hasn’t been in remission for over 10 years.
I never knew I had this but evidently I have had it all my adult life just never to this extent. Usually a shot and series of prednisone and I’m good to go but not this time and I can’t find what triggered it—as in what I am allergic to. So…my life has been miserable to say the least.
Some days are pretty good and some are downright awful. I have tried everything including a new medicine that is used to treat leprosy—no kidding. I had to go off my blood pressure meds for this and I was taking so much antihistamine—a double dose plus 2 doses of Benadryl and nothing made it better. I tried meditation and other things and then I began to bleed under the skin—bruising for no reason other than my veins began to leak. I was concerned that my AVM might rupture so we dropped off the Benadryl and all pain relievers…eeeeeeeekkk!!!! 😦
Then I began to notice that I felt like I was producing more adrenaline than I should. I feel like the hair on my body is standing on end all of the time. I can’t control it. I did some reading. Mostly in men if there is an increase in adrenaline then there is a drop in testosterone. Hmmm. That’s interesting. While the two don’t really work together they affect each other. So I began to wonder if I bring up my testosterone level if the adrenaline will ease up. It is worth a try.
I added some magnesium, zinc, and calcium along with some B12 to my daily routine. It’s best to get vitamins and minerals from foods but I need to experiment to get this stopped. I’m able to exercise more and I actually had a decent day for a change—not great but decent. I found that there have been suggestions that excess adrenaline can lead to autoimmune dysfunction but usually it isn’t caught before people begin to suffer from rheumatoid arthritis for one but there are many other things out there in the autoimmune disease category.
Someone suggested the Paleo diet plan and I looked into it. It’s pretty good. I tried the AIP diet but my doctor said she would rather me just to eat healthy so I stopped—it is a little difficult to just jump in if one is used to eating about anything. So, I’m trying to get good nutrition. One thing that is important is to get enough probiotics in my colon and then feeding the good bacteria. So often we take in probiotics but we forget that the bacteria need certain foods to sustain itself and there are better foods than others. Sounds complicated and it has been.
I just know that I’m tired of the itching and discomfort and everything I have been going through. I have been at the end of my rope, crying with pain and itching. The next stop if this medicine doesn’t work is a drug that costs a lot of money and my insurance may not pay for it. We will see. Fingers crossed that this will go into remission with this medicine that I am on. Oh, and I have to carry an epipen around—are we having fun yet? 🙂 I hope everyone is doing better than I am.
May your garden grow full of love and goodness. 🙂
Oh my God, that is horrible. Not sure why I pushed like… just to show support. I only had the full body rash once and am still traumatized thinking about it. I just remember rolling around in pain and then getting pumped full of steroids to make it go away. I hope that your new treatment works out. Really sorry for your situation.
I’ve been wondering how you were doing. I’m so sorry you’ve been suffering through this. I hope everything works out well for you very soon.
Sorry to hear about your autoimmune problems. At least we figured out what initially triggered mine, not that it’s solved any problems. I hope you find some kind of solution, even if it’s only partially effective.
The AIP diet did nothing for me. Knowing my triggers, it’s not surprising.
I’m sorry to hear that. I hope you find better days. Thanks. I’m on my third month of dapsone and slowly becoming anemic. After having a really awful breakout just after Thanksgiving and being on prednisone again, I have had some better days–especially less itching. The diet wasn’t doing anything positive that I could find but I’m still drinking lots of water. I have no idea what triggered this but it would be fine with me if it would just all disappear. Wishing you the best for the New Year! Take care! 🙂