Medical Update

I’ve been having issues with my cerebral AVM. Seizures were being controlled with meds but they have been making an appearance recently – not full blown but some numbing with greater frequency. With the pandemic last year the neurologist and hospital didn’t want me to come in unless I really needed to. My apppintments kept being pushed back and they now have to fit with daughter’s schedule. Office called today to move next week’s appointment. Sigh. It’s fine I guess but he leaves the practice at the end of the month when I get another doctor assigned to me so hopefully that will be worked out next year. In the meantime I need an MRI. I hate the things. With my back degeneration it’s impossible to lie still in the same position for the approximate hour it takes. I used to do it with no problem. I’ve had many of the boogers along the way..used to be every 5-7 years then every 2-3 years. It’s been 4.5 years now so I’m overdue. I slipped last night and find it more difficult to concentrate lately. This doctor thinks the hot poker pain in my face are actually seizures coupled with trigeminal neuralgia. The TN I can vouch for and I think he’s right about the other. He’s not the best neurologist but not the worst either. Of course none have ever seen a case like mine. I was always like the guinea pig – all types of tests. My file used to be the size of a large volume. Today, it’s all digital and most of the earlier records are gone. “We” have been doing this since 1970. There’s a lot of history but most are only interested in what they see in the present.

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